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CCG seeks people’s views on East Lancashire Parkinson’s nursing service

NHS East Lancashire Clinical Commissioning Group (CCG) is seeking the views of people who use, or have used the East Lancashire Parkinson’s nursing service.

This is to ensure that the CCG commissions (buys) the right services for those who need and use this service. It will help patients get the most out of the service and help services to see where improvements can be made.

The Parkinson's nursing service supports patients and families with a confirmed diagnosis of Parkinson's. It also offers specialist nursing assessment and advice on the management of Parkinson's. It is a community based service, that supports patients in clinics throughout East Lancashire, and it also offers home, hospital and care home visits.

The three main symptoms of Parkinson's disease affect physical movement:

Tremor – shaking, which usually begins in the hand or arm and is more likely to occur when the limb is relaxed and resting

Slowness of movement (bradykinesia) – where physical movements are much slower than normal, which can make everyday tasks difficult and can result in a distinctive slow, shuffling walk with very small steps

Muscle stiffness (rigidity) – stiffness and tension in the muscles, which can make it difficult to move around and make facial expressions, and can result in painful muscle cramps (dystonia)

These main symptoms are sometimes referred to by doctors as parkinsonism as there can be causes other than Parkinson's disease.

East Lancashire CCG is responsible for commissioning (buying) health care services on behalf of local people and it is reviewing the service as part of its ongoing work to ensure that it is meeting the needs of patients who use it. The CCG commissions Burnley Group Practice to deliver this service to patients living in East Lancashire.

Dr Santhosh Davis, local GP and Integrated Care Lead at the CCG said:

“Our overarching aim is to improve health and wellbeing outcomes and the quality of care for our population. We have a unique opportunity, in undertaking these service reviews to do so in partnership with patients and the public. By listening to people’s views about the Parkinson’s nursing service we can use this information to develop and improve services which really do meet the needs of patients.

“We are asking people, about their experiences and views of the Parkinson’s nursing service in a stakeholder engagement campaign called ‘Your Services, Your Say’."

People who have used this are encouraged to submit their views on the following three questions:

1. What do you like about the service?
2. What, if anything could we do better?
3. Is there anything else you would like to tell us about the service?

Feedback can be submitted via any of the following methods

Online survey: https://www.surveymonkey.co.uk/r/ParkinsonNurses
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: 01282 644627
Writing: Freepost NHS EAST LANCASHIRE CCG

The survey has commenced in January 2019 for a period of 4 weeks.

Survey questionnaires are available online and paper copies will also be available via the Parkinson’s nursing service and GP practices in East Lancashire.