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CCG seeks people’s views on East Lancashire Lymphoedema Service

NHS East Lancashire Clinical Commissioning Group (CCG) is seeking the views of people who use, or have used the East Lancashire Lymphoedema service.

This is to ensure that the CCG commissions (buys) the right services for those who need it.  It will also help patients get the most out of the service and help the service to see where improvements can be made.

Lymphoedema is a long-term (chronic) condition that causes swelling in the body's tissues. It can arise in any part of the body, but usually develops in the arms or legs. At first, the swelling may come and go. It may get worse during the day and go down overnight. People with lymphoedema may find it difficult to fit into clothes, and jewellery and watches can feel tight.

Lymphoedema develops when the lymphatic system doesn't work properly. The lymphatic system is a network of channels and glands throughout the body that helps fight infection and remove excess fluid. It's important that lymphoedema is identified and treated as soon as possible. If it isn't treated, it can get worse.

East Lancashire CCG is responsible for commissioning (buying) health care services on behalf of local people and it is reviewing the service as part of its ongoing work to ensure that it is meeting the needs of patients who use it. The CCG commissions East Lancashire Hospitals Trust (ELHT) to provide a lymphoedema service which delivers nurse led diagnosis and management to East Lancashire patients over the age of 18.

Dr Santhosh Davis, local GP and Integrated Care Lead at the CCG said:

“Our overarching aim is to improve health and wellbeing outcomes and the quality of care for our population. We have a unique opportunity, in undertaking these service reviews to do so in partnership with patients and the public. By listening to people’s views about the lymphoedema service we can use this information to develop and improve services which really do meet the needs of patients.

“We are asking people, about their experiences and views of the lymphoedema service in a stakeholder engagement campaign called ‘Your Services, Your Say’." 

People who have used this service (as a patient or carer) or who have any experience of the service e.g. as a health care professional, are encouraged to submit their views on the following three questions:

  1. What do you like about the service?
  2. What, if anything could we do better?
  3. Is there anything else you would like to tell us about the service?

Feedback can be submitted via any of the following methods

Online survey: www.surveymonkey.co.uk/r/lymphoedemareview

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Phone: 01282 644627

Writing: Freepost NHS EAST LANCASHIRE CCG

The Lymphoedema Service survey will commence in January 2019 for a period of 4 weeks.  

Survey questionnaires are available online and paper copies will be available via the lymphoedema service and GP practices in East Lancashire.