Pennine Lancashire End of Life and Palliative Care Strategy
In July 2008, the Department of Health (DH) introduced an ‘End of Life Care Strategy – Promoting high quality care for all adults at the end of life.’ The strategy represents an important milestone for health and social care. It is the first comprehensive framework aimed at promoting high quality care across the country for all adults approaching the end of life. It also outlines a structure on which health and social care services can develop effective, high quality services. By supporting these underpinning principles, the Pennine Lancashire health and social care economy has developed a local End of Life Care Strategy designed to deliver a vision of high quality services developed around the needs of individuals and their families requiring End of Life Care, including support for their physical, psychosocial, emotional and spiritual needs.
The strategy has been developed in partnership, and after consultation, with a wide range of stakeholders including NHS East Lancashire Clinical Commissioning Group (EL CCG), NHS Blackburn with Darwen Clinical Commissioning Group (BwD CCG), East Lancashire Hospitals NHS Trust (ELHT), Lancashire Care NHS Foundation Trust (LCFT), Lancashire County Council (LCC), local hospices and third sector organisations. The collective philosophy of the strategy is one of equity of access and equality of care for all residents of Pennine Lancashire. The Pennine Lancashire footprint comprises the boroughs of Blackburn with Darwen, Hyndburn, Burnley, Ribble Valley, Pendle. and Rossendale.
End of Life services will be delivered by a range of providers working collaboratively to provide services based on the patient’s needs and preferences, to achieve a death that is in the place chosen by the patient. NHS East Lancashire CCG and NHS Blackburn with Darwen CCG already commission different aspects of palliative health care for a growing number of its residents through existing contracts. Lancashire County Council also commissions a number of services that support the delivery of integrated palliative and End of Life Care. Services will need to be commissioned across a number of different settings; patients own home, care homes, sheltered/extra care housing, hospices or hospitals. On some occasions they will also be needed in other locations such as hostels for the homeless and independent living homes for people with learning disabilities and mental health problems.
For the purpose of this strategy End of Life Care involves:
- Adults with any advanced, progressive, incurable illness (e.g. advanced cancer, heart failure, chronic obstructive pulmonary disease, cerebrovascular disease, chronic neurological conditions, dementia); advancing age and frailty.
- Care given in all settings (e.g. home, acute hospital, residential/care home, nursing home, hospice, community hospital and others).
- Care given in the last 12 months of life.
- Patients, carers and family members (including care given after bereavement).
- The population of Pennine Lancashire.
Advance Care Planning
Advance Care Planning can help you plan for the future. It gives you an opportunity to think about, talk about and write down your preferences and priorities for your future care, including how you want to receive your care. The choice is yours as to who you share the information with. By recording your preferences in this booklet it will help to ensure that your wishes are taken into account.
Advance Care Planning can help you and your carers (family and friends who are involved in your care) to understand what is important to you. The plan provides an ideal opportunity to discuss and record in writing your views with those who are close to you. It will help you to be clear about the decisions you make and it will allow you to record your wishes in writing so that they can be carried out at the appropriate time.
Remember that your feelings and priorities may change over time. You have choices in what may happen in the future such as being able to remain living independently at home. This document allows you to voice your own preferred choices. You can change what you have written whenever you wish to, and it would be advisable to review your plan regularly (every 3-6 months) to make sure that it still reflects what you want. Remember to sign and date this document when you review it so that it is clear to others.
Please note that this booklet and Sections are not designed to be completed all at once. It can be filled in over a period of time, as and when you feel comfortable to do so, but a good place to start is Section One “Statement of your wishes and care preferences”.
For health and social care professionals we have also established a training directory. This will be updated regularly, and ultimately we hope to have a searchable database of courses for health professionals, so watch this space!